Your Patients Are Online, Why Aren’t You?
The internet is the perfect medium to deliver health education campaigns. Unlike traditional media, the internet provides interactive, multimedia and customizable content for the user. However, the inherent advantages of such health educational campaigns have not been fully understood or measured. There is no question that individuals will continue using the internet as a source for health information and to build a sense of community. The issue for health care providers to ponder is not whether patients will use this medium, rather what aspects of on-line participation produces the best outcomes for improving specific health conditions. For example, health professionals on Twitter, might be able to recognize incorrect health information tweeted by others and can broadcast evidence-based facts to the community. If enough followers read the valid information and retweet it to their followers, potentially thousands of people will see the message. This has tremendous power to reach many people with a single brief message. Of course, a health professional must be cautious providing specific recommendations to “patients” via this medium for fear of patient confidentiality and liability issues. An additional challenge is safeguarding privacy while making the content user-specific.
Health education and information were among the primary factors for my pursuit of an advanced practice nursing degree. There is a vast amount of health information available on the internet. Unfortunately, some of this information is inaccurate or wrong. As a primary care provider, nurse practitioners hold a unique perspective and the potential to positively impact patient attitudes, beliefs and knowledge base about their health. The dissemination of evidence-based information can be extremely difficult. Conflicting recommendations and inconclusive data are among the challenges of incorporating evidence-based methods into practice. For-profit advertisers and special interests further complicate the health information landscape by claiming their product’s dramatic results under the guise of valid research.
Health care doesn’t only take place in medical facilities or institutions – it happens every single minute of every day as patients must constantly make choices about what they should eat, if they should exercise, and whether to take that medication or not. Therefore it is imperative to provide patients with culturally specific and evidence-based information to support the decisions and choices they make. On-line social communities and networks are empowering for patients and provide opportunities to seek individuals with similar diagnoses or prognoses. It is an outlet for patients and can aide as a coping mechanism to ultimately allow better self-care and health decisions. Therefore, the potential power of this medium is vast.
As technology continues to evolve and new forms of communication are introduced, clinicians must be familiar and comfortable with these methods. The availability of health information on the internet has changed how clinicians care for patients. In general, access and interaction with information creates a more engaged patient and is a sign of patient empowerment. Perhaps the greatest sign of this is the website, Patients Like Me, a networking site dedicated to sharing real patient data. Their goal is to “…enable people to share information that can improve the lives of patients diagnosed with life changing diseases.” The website relies on patient entered data to generate new knowledge about a specific condition in the hopes of creating wisdom that the health care community can utilize to better care for these conditions. The data (without any specific patient identifiers) is available to researchers and clinicians for analysis.
Online support communities and health education are areas that are very popular with patients. It is important for clinicians to be aware of these sites and appropriately recommend them for their patients who are good candidates for this medium.

